br Several limitations identified in this study include we
Several limitations identified in this P 22077 study, include: (1) we were unable to ascertain which resources are most popular and most frequently visited by caregivers, (2) we did not have context on which resources are currently recommended by physicians, (3) we did not have context on the resources currently available and utilized by cancer centers and hospitals, and (4) we only evaluated English-language resources. These points will need to be addressed in a further study.
This was the first study to evaluate the suitability, readability, quality, and usefulness of the online resources available to cancer caregivers. Overall, study findings suggest that the resources available to cancer
caregivers are not optimal and fail to address caregivers’ most pressing needs. Of the 55 resources evaluated, Cancer Council Australia’s booklet, Caring for Someone with Cancer (2014 and 2017 Eds.) and the American Cancer Society’s webpages, Caregivers and Families, ranked top three in two of the three assessment categories.
4.3 Practice Implications
With the shift in the acquisition of health information from print to online resources, publicly available resources retrievable through popular online search engines should adequately address caregivers’ information needs. Though other forms of information and support are available to cancer caregivers, the findings of this study suggest that there is an urgent need to improve and enhance online resources in the form of webpages, online booklets, and online fact sheets, in order to diminish misinformation and misunderstanding, which can have far-reaching effects on cancer caregivers and the care recipient.Our findings will allow health care professionals to better address the needs of cancer caregivers by recommending information resources that are most appropriate and most likely to meet their unmet care needs.
Competing interests: the authors have no competing interests to declare
This work was supported by the Kevric Summer Research Bursary, the Dr. Clarke K. McLeod Memorial Scholarship, and the Class of Medicine 1960 Research Bursary. Dr. Lambert was supported by a Canada Research Chair (Tier 2).
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